Friday's decisions

We had a lot of discussion and decisions to talk about yesterday.
Scott and I hashed and rehashed the whole Hershey thing.
Because while we are not very far into the process, starting over at a new hospital would no doubt lead to more delay.

But here is the bottom line. I did not like the transplant doctor from Hershey right from the beginning and my first instinct was to walk away then...should have gone with that then.
But after the discussions with his nurse and then with himself yesterday and Wednesday, it left me with no doubt at all they were not the right team for the job.
I had no confidence what so ever that they had Brian's best interest in mind. It is more then just about personality, though honestly I found little appealing about the doctor and it was difficult to fit into the room with his ego.
Certainly this not being our first dance with "specialists" I've encountered it before, but to attempt to manipulate my cooperation by telling me a easy verifiable blatant untruth....no, I lost any respect and all trust.

We have started the process over. Today after some calls to the medicaid to see about the difficulty involved in switching hospitals, we choose to pursue treatment at University of Pennsylvania. I would have liked to consider RWJUH, but the time involved to get the insurance approved for out of state was simply too risky. If it was approved and we had to appeal, it would take time we don't have.
University of Pennsylvania is rated 14th in the country and when I spoke with the Foundation of accreditation of cellular therapy yesterday, I found that they supported the US News and World Report rating system.
I hate to drive in Philly and really have no love for the city period...but we all do what we have to.
I spoke with their financial counselor today, got Brian his patient number and will be getting an appointment scheduled on Tuesday after the holiday. Since I Have the advantage of knowing what Hershey's time frame was, I can judge delays from there. But on the other hand, Brian is all ready to go and all the pre-transplant testing is all done. We hope for the best from this stage forward.
It has been emotionally exhausting the last few days with all of this turmoil and I look forward to a relaxing weekend.

This weekend is the Celtic Festival and we look forward to some good old fashion fun.