Christmas fell flat,it was my fault, I have had a virus all week and just didn't feel up to it.
Brian was really cool about it, he always worries about me when I am not 100%. He and Scott had a little together time and watched some tv, that was good.
Brian then of course decided to share in my virus...but we're both feeling better tonight. But he's pretty tired.
Scott and I were married 26 years ago today...what a long year this last one has been. Stephanie gave us a $20.00 card to olive garden, but with my stomach just on the mend, I do not think eating out is a good idea at all...and Scott has to work anyhow.
if I feel up to it, Brian wants to set up a work table to learn to solder....he is showing quite the interest in my tools...DAMN IT.... :)
Wednesday, December 29, 2010
Thursday, December 23, 2010
Happy Holidays
Brian and I stayed up and enjoyed the eclipse on tuesday morning, (early) it was wicked cold, but the eclipse was well worth it.
Brian has been kind of down in the dumps, but he's starting to feel better, and back to researching solar panels...he really wants to build some. Health wise he is doing well...but he gets very tired after about 5 hours of a normal day and it frustrates him even though the doctors say he is doing really great for where he is at.
Today Stephanie and I baked cookies and we all worked on our regular chores...but we got a late start at it, so we're watching the grinch and cleaning the carpet at the same time..
Even though we couldn't get a tree, I did manage some lights in the living room in an attempt to be festive.
I would have loved a completely low key dinner for xmas, but apparently Stephanie comes with a Tim now to all events...but it's okay.
As you all know Scott and I will be married 26 years next week...it will be another low key celebration, but we're slowing getting our groove back. We just need a crisis free couple of months I think.
time to go, Stephanie just came in with her hands and arms all hived up...did I just mention some crisis free time?....
thank goodness for benadryl....
Brian has been kind of down in the dumps, but he's starting to feel better, and back to researching solar panels...he really wants to build some. Health wise he is doing well...but he gets very tired after about 5 hours of a normal day and it frustrates him even though the doctors say he is doing really great for where he is at.
Today Stephanie and I baked cookies and we all worked on our regular chores...but we got a late start at it, so we're watching the grinch and cleaning the carpet at the same time..
Even though we couldn't get a tree, I did manage some lights in the living room in an attempt to be festive.
I would have loved a completely low key dinner for xmas, but apparently Stephanie comes with a Tim now to all events...but it's okay.
As you all know Scott and I will be married 26 years next week...it will be another low key celebration, but we're slowing getting our groove back. We just need a crisis free couple of months I think.
time to go, Stephanie just came in with her hands and arms all hived up...did I just mention some crisis free time?....
thank goodness for benadryl....
Saturday, December 18, 2010
a christmas gesture
We're pretty worn out from everything. It's kind of hard to get into the holiday spirit as well...and we don't really have any extra money to spend, I cant really justify the expense of a Christmas tree this year.
But as that might be the case, I do have some dolls from my collection that in the current market are not sale able on ebay, so I have decided that if we can't really have a Christmas, we can bring on to someone else who can't either. Christmas is the one time where I do try and do something nice for people rather then my more favorite volunteer work of animals. So I am working on finding a local girl (or boy) who wouldn't have Christmas otherwise. If I can't find someone local, (I expect I can) then I will go down to the pediatric ward at Lehigh Valley Hosp. and bring some thing there...(we've done the hospital thing many times since Brian's first admission to Robert wood in 2000)
This is the first year in while there is no shopping, very little decorating in a lot of years, but hopefully this time next year things will be better. It's just stuff anyhow...
Brian is pretty tired this week, but we went to breakfast this morning where Stephanie works, they have a little family breakfast at the holidays, and it was nice to get to meet all these people I have heard so much about, as well as see some of her coworkers we've already met. We had a good time.
I am sending out cards this xmas, but I'll be in touch with all of you who have sent them shortly. Thanks for the well wishes and updated kids pix...
But as that might be the case, I do have some dolls from my collection that in the current market are not sale able on ebay, so I have decided that if we can't really have a Christmas, we can bring on to someone else who can't either. Christmas is the one time where I do try and do something nice for people rather then my more favorite volunteer work of animals. So I am working on finding a local girl (or boy) who wouldn't have Christmas otherwise. If I can't find someone local, (I expect I can) then I will go down to the pediatric ward at Lehigh Valley Hosp. and bring some thing there...(we've done the hospital thing many times since Brian's first admission to Robert wood in 2000)
This is the first year in while there is no shopping, very little decorating in a lot of years, but hopefully this time next year things will be better. It's just stuff anyhow...
Brian is pretty tired this week, but we went to breakfast this morning where Stephanie works, they have a little family breakfast at the holidays, and it was nice to get to meet all these people I have heard so much about, as well as see some of her coworkers we've already met. We had a good time.
I am sending out cards this xmas, but I'll be in touch with all of you who have sent them shortly. Thanks for the well wishes and updated kids pix...
Sunday, December 12, 2010
Stop suffering. Make our community No Kill with funding for vet care. | Pepsi Refresh Everything
Stop suffering. Make our community No Kill with funding for vet care. | Pepsi Refresh Everything
This is a great group that helps lots of local pets and owners alike, please take a few minutes and vote for them so they can win money to keep doing the good things that they do. As you all know our animals are very important to Brian.
This is a great group that helps lots of local pets and owners alike, please take a few minutes and vote for them so they can win money to keep doing the good things that they do. As you all know our animals are very important to Brian.
Saturday, December 11, 2010
weekend update
In a few short weeks, it will be a year since the nightmare began again. What a year it has been.
We have dealt with what seems to be an unending barrage of misfortune. We have not come out the other side unscathed either. This year has taken some terrible tolls on our relationships with one another and others.
There have been life altering events again....my biggest mistake was in thinking that because we'd been through this before, it would somehow be easier...we'd be prepared, able to anticipate pitfalls..etc...
no, that simply has not been the case.
At the end of all this, we can say that the fantastic part is that Brian's cancer is once again in remission...but our life?...it's looking a little post apocalyptic. It's also hard to figure out where to start the clean up when the little personal bombs are still dropping.
The stress toll has been horrific. The damage done can't be counted and evaluated for many months.
We need the fallout to stop, but it's going to be a slow recovery...there are a lot of pieces to pick up. I don't have the patience for that kind of thing, so that will be a challenge for me.
We have had a lot of surprises along the way this year, some good, some not so good. my biggest disappointment in people I expected that Brian could count on for support, and a few I expected to be able to count on as well. But we also made some new friends and there are those one or two who never let me down. Without them, this would have been even harder.
It is far from over, in fact now more then ever, we have to embrace this as our life's journey. To be ever vigilant and prepared for Brian's cancer to invade once again, but for now we rest up, regroup, refocus and recover. We move to the mop up phase for now.
Brian's port a cath removal had to be rescheduled, I'll post a date when I have one.
We have dealt with what seems to be an unending barrage of misfortune. We have not come out the other side unscathed either. This year has taken some terrible tolls on our relationships with one another and others.
There have been life altering events again....my biggest mistake was in thinking that because we'd been through this before, it would somehow be easier...we'd be prepared, able to anticipate pitfalls..etc...
no, that simply has not been the case.
At the end of all this, we can say that the fantastic part is that Brian's cancer is once again in remission...but our life?...it's looking a little post apocalyptic. It's also hard to figure out where to start the clean up when the little personal bombs are still dropping.
The stress toll has been horrific. The damage done can't be counted and evaluated for many months.
We need the fallout to stop, but it's going to be a slow recovery...there are a lot of pieces to pick up. I don't have the patience for that kind of thing, so that will be a challenge for me.
We have had a lot of surprises along the way this year, some good, some not so good. my biggest disappointment in people I expected that Brian could count on for support, and a few I expected to be able to count on as well. But we also made some new friends and there are those one or two who never let me down. Without them, this would have been even harder.
It is far from over, in fact now more then ever, we have to embrace this as our life's journey. To be ever vigilant and prepared for Brian's cancer to invade once again, but for now we rest up, regroup, refocus and recover. We move to the mop up phase for now.
Brian's port a cath removal had to be rescheduled, I'll post a date when I have one.
Friday, December 3, 2010
friday update
Brian is still at my sister's having a nice week long visit. I can only hope after all the socializing he is doing while there, he is having a good time. I know he's tired, I can hear it in his voice when he calls.
Scott is back to work..again...but he really needs a new job. At least his is taking his medication regularly and has accepted at least this week he suffers form a disease that requires daily meds.
I am plain worn out. But no rest for the wicked.
Stephanie has left me a bit disappointed in her recent choices, but we've raised her to be a good person with good values so I can only home she starts using some more common sense and courtesy soon and stops thinking with her hormones. Guess it is teenage rebellion come late...(BIG FUCKING SIGH)
Scott is back to work..again...but he really needs a new job. At least his is taking his medication regularly and has accepted at least this week he suffers form a disease that requires daily meds.
I am plain worn out. But no rest for the wicked.
Stephanie has left me a bit disappointed in her recent choices, but we've raised her to be a good person with good values so I can only home she starts using some more common sense and courtesy soon and stops thinking with her hormones. Guess it is teenage rebellion come late...(BIG FUCKING SIGH)
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