eye dr. update

Sorry I forgot the eye dr update....Brian had some trouble with his eyes when he was in Univ. of Penn for the stem cell transplant from some of the chemo drugs.

His eyes are ok, just worse, they warned us this would happen. His prescription incristed by 1 in his one eye and by 2 in his other eye....so he does need new glasses....Not covered at all by medicaid, so I have to hunt around for someplace where they are not going to cost me a fortune...Scott's eyes are fine, the surgery he had two years ago has fixed the CSR and it has stayed fixed which is good news....I need new bifocals the nearsidedness required a tiny adjustment but the farsittedness almost doubled....guess I am going to need those books with the big print soon..lol

it is C O L D here today...about 7degrees...we are suppose to get some snow but I dont know if it will snow when it is that cold
(hope so , I love snow)

sleep perchance to dream...

Brian's alseep....might as well get back in the habit of sleeping whn he is sleeping...I did a bit of research on treatment trials today...what would I do without pubmed?...cat in snow

I leave u with a cute video tonight...on this very cold snowy night....(not one of my cats)

enjoy

updates ..more detailed...

so Monday we have the long drive to Uof P to meet with the surgeon so he can tell us all the things we know already and to do blood work Brian just had done yesterday again.
Then we have to schedule a surgical appt for biopsy.

Do I sound frustrated?..it is because I know we're going to spend 6 hours in the car and all that gas money for a 25 minute visit with a docotor to hear things when have heard SO many times before..I HATE bureacucracy and particularly medical BS...

pfft....

here's the scan from yesterdays paperwork....we won't have a date for the biopsy until at least next week. Hurry up to sit and wait...and is there ANY wonder left why I am nuts???

LOL

on top of it, Lehigh did not send Dr. Nasta ANY test results so I have to do their job for them as well....since they are not playing nice together....

I called the trucking company who's truck broke my windshield....they are suppose to get back to me..I won't hold my breath.......but it's dead center in the middle of the driver's side so it has to be replaced.... ;(

sorry for the crappy scan, the printer atthe hospital yesterday ran out of ink....if you cant read anything you want to. just email me

University of PA update

I'm too tired tonight to post all the details and I have to return a phone call in the am to know the schedule for sure..but the bottom scoop is we're going to biopsy for a differential disgnosis to formulate a treatment plan. They mentioned a newer chemo drug but said it wouldnt work without another stem cell transplant and /or radiation...in any event, although nothing will be definate until the biospy results are back..looks like ...survey says it sucks....meeting with surgeon in Philly again on Monday....oh and a rock hit my winshield on the way home on 476 and broke it...we're gonna bleep out what I have to say about that...bllepppppppppppp.

update

well....next week is busy, we have eye doctor on tuesday to check the residual issues from the chemo...he had some trouble with his eyes during the stem cell transplant..then we are headed to Philadelphia on wednesday....
since we're headed to the eye dr tuesday we figured it was prudent since Scott and I are way over due for an exam to get our eyes checked too...I know for sure my prescription is WAY off since I have trouble with focus...but yikes..no idea how we'll budge those glasses in especially if Brian needs them..medicare doesnt pay for any of his costs.
I'm running out of ebay items to auction off and wow are they not doing so well in this economy ;(...

oh well....at least my exam is covered by insurance and a tiny bit off the lenses..

Philadelphia postponed

trip rescheduled due to flu....1/23 is reschedule date...
Brian's toe is also infected again, he is just not getting rid of this and I am starting to be concerned about why...

scan reports

PET SCAN results

so I know some of you have been patiently waiting for an update on Brian's PET scan results....I will scan the report into the blog page later tonight so you all can read...one of the reasons I do scan the results is so you understand what we go through is real, not exaggerated or made up.

so back to the results....they were interesting...the enlarged lymphnodes did not show active lymphoma, but the smaller ones did take up the contrast....the conclusion being (direct quote from report) " overall findings remain suspicious for early recurrent malignancy"
labs show low platelets and the rest of his blood work in the normal range....

where do we go from here....we are meeting with the Oncologist from Univ Of Penn on 1/9 to see if she wants to biospy the nodes now. His local oncologist wants to wait and rescan in 3 months, expecting that if the lymphoma is active, we'll know before that because it grows very quickly.

oh and his spleen is still enlarged, but is slightly smaller then in Oct..

because of the ongoing travel and medication expenses, once I get the paperwork done this week, I'll be doing auctions again...we received 2 donations this month which we greatly appreciated to help with costs.