Saturday, July 17, 2010

Saturday's update

Brian is feeling a little manic right now. It's hard for him to sit and wait. His activity is so limited by his catheter and his health (tired ), and his brain is going a million miles a minute.

He spent today frustrated with a computer game he is trying to modify to get running on the old laptop. He spent the better part of the day trying to convince me to purchase a version of the game with other games for "only" $29.95....he was way too manic to listen to the "we can't afford it".

If you have never dealt with a manic phase, let me tell you that there isn't always reasoning with it. There certainly was a time when we could and would have simply made the purchase to make our lives easier. But Brian has done so well without medication and he went off frustrated but hours later had a solution.( that he can reluctantly live with) But it does make life a little more challenging then I'd choose. But if I had to choose, well, life wouldn't be consumed with cancer treatments either.

Despite how hard we try, there are always things and people to remind us we're not trying hard enough, or doing the right things. We just do the best we can and learn to be as happy as we can under the circumstances.

I myself and Scott and Stephanie are all feeling the funk of the pressure for 7 months now. IT can be depressing and frustrating and annoying and we're just the help...Brian has to suffer the pain, the side effects, the indignities, the frustration. It has to be so much worse for him. SO many things are answered with a no these days...you can't have that, you can't do that...

And yet, I watch him and I see how much he's grown and over come. It's amazing to think that this was a child the schools didn't even know how to educate. He's so smart, his knowledge far exceeds mine now, and yet he remains steadfast and dedicated to learning and figuring out how to make our lives less wasteful, more environmentally friendly. As annoying as h e can be, he really is an amazing young man, if not just a little intense....

Here is Brian's political take this week for you all to share....(he is very verbal about politics)I'm sure given time he'll change the date....
and for those who don't know who Cthulhu is....click here....

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