Thursday's update

Well,
it's been a long week of re planing, phone calls around to medicaid, University of Penn, Dr.'s office,...etc...

So we are scheduled to see a Dr. Nasta and I already feel better at the idea of leaving Hershey Medical Center behind us.
It is impossible to allow a doctor like Dr. Ehmann care for Brian. Since he was not only so incredibly egotistical and narcissistic, but allowing his nurse to deliberately misrepresent information that I easily verified as untrue. There was also a drastic inconsistency in the original plan for treatment outline and the one discussed weeks later on the phone. While I do not know what exactly the issues were, I do know they were not the doctor/team for us. It is necessary for a doctor to take into consideration the whole picture and not the part of it they want when dealing with a patient and an illness like this.
I certainly do have concerns that at this point, we are approximately 5 weeks behind (with the appointment June 16th) where we might have been with Hershey, we don't have to wait to schedule testing that is already done, and I hope to gain back some of those weeks after our first appointment.

For those of you from Hershey now reading the blog...don't forget to feel free to stop in and say HI!!....

you'll also want to read Monday 6/7 update for a more detailed explanation.

So we will continue on from here. Brian is suffering some allergy issues with sneezing and sniffling and today he had quite the nose bleed, but these are usual spring time events for Brian and don't in of themselves concern me.
He had a nice visit with Anut Deb and Grandma, and was tired from that, but is feeling better today.
I have a ton of paperwork to catch up on from this week and since it looks like several days of rain, will have time to work on it....damn it....
I played hookie from paperwork yesterday and spent the whole day in the garden. It was delightful.

a special thanks to Anut Deb's friend Tina who sent Brian a lovely card and a very kind donation. As always, those things are very much appreciated and help make things a little easier for Brian and all of us.