Brian is really feeling poorly tonight. I think it is double disappointing to him because he was feeling okay and so sure he was going to control the side effects.
I am doing his laundry now then I am going to call him and see how he is. If his fever is up any further then I am going to head back to the hospital for. The night.
He's got several antibiotic iv's up now, and hopefully he'll be rallying against the machine soon.
Saturday, July 31, 2010
saturday pm update
well...Brian's got a fever now( 100.6 is the chemo fever cut off) , so it is "fever" protocol....chest xrays, blood cultures, antibiotics...
I'll wait on the results to see if this changes my plans to sleep at the guest house and do laundry. I've been here at the hospital since tuesday and need to wash Bri's clothes and could use a decent night sleep and a meal someplace else then the hospital cafeteria...
oh well....
I'll wait on the results to see if this changes my plans to sleep at the guest house and do laundry. I've been here at the hospital since tuesday and need to wash Bri's clothes and could use a decent night sleep and a meal someplace else then the hospital cafeteria...
oh well....
saturday update
Brian's white count has now dipped to 0.2 That is very low. But his red count is holding around 3 and his platelets dropped to 78, but they are hanging on, so no transfusions today.
He is a great risk to infection and unfortunately he has developed mucusitis down his esophagus and stomach. Painful and annoying.
He's feeling a little less today...a little less everything. But none of these side effects are new to Brian so while painful, not surprising,
He's still bored and unhappy at his food limitations.
I am going to run out and do his laundry and see if I can procure some neutropenic approved Brian food....
He is a great risk to infection and unfortunately he has developed mucusitis down his esophagus and stomach. Painful and annoying.
He's feeling a little less today...a little less everything. But none of these side effects are new to Brian so while painful, not surprising,
He's still bored and unhappy at his food limitations.
I am going to run out and do his laundry and see if I can procure some neutropenic approved Brian food....
Friday, July 30, 2010
Friday pm update
Aggravation.....my favorite Brian emotion...he is annoyed at his diet limitations. Brian is never happy when someone comes between him and his food.
Not being home, we have no choice but to rely on take out and he can't have any. Just frozen, hospital or home cooked. No fresh fruits and veggies...he is cranky....and determined now to consume all the milk pints in the hospital.
the internet has not worked today here at all, so it's been a long day, no tv and no internet....sucks for both of us.
stephanie is sick and apparently didn't get much sleep at home, so I got a cranky phone call from her as well.
on an up side, Brian is basically in good spirits, pacing like a mad man because he refuses to get any more heparin injections and bugging everyone to get out of here. Exactly what I expect from him at this point.
complaining that the antivirals and antifungals taste funny, make his pee smell funny,Now, let's see what tomorrow brings....so far nothing unexpected.
There hasn't been the pink pee that we were told to watch for as he shed some of his stem cells..so maybe his body has gobbled them all up and put them to good use. Tomorrows labs will be interesting to see.
so far he has one anal sore, a little bit of peeling in his mouth, some pustules on his head but nothing too serious.
Not being home, we have no choice but to rely on take out and he can't have any. Just frozen, hospital or home cooked. No fresh fruits and veggies...he is cranky....and determined now to consume all the milk pints in the hospital.
the internet has not worked today here at all, so it's been a long day, no tv and no internet....sucks for both of us.
stephanie is sick and apparently didn't get much sleep at home, so I got a cranky phone call from her as well.
on an up side, Brian is basically in good spirits, pacing like a mad man because he refuses to get any more heparin injections and bugging everyone to get out of here. Exactly what I expect from him at this point.
complaining that the antivirals and antifungals taste funny, make his pee smell funny,Now, let's see what tomorrow brings....so far nothing unexpected.
There hasn't been the pink pee that we were told to watch for as he shed some of his stem cells..so maybe his body has gobbled them all up and put them to good use. Tomorrows labs will be interesting to see.
so far he has one anal sore, a little bit of peeling in his mouth, some pustules on his head but nothing too serious.
friday am update
Well....the labs say.....NEUTROPENIC....
his white count is in the toilet.....very low...500 when normal is 4000-10000.
so no real surprise, but he still feels good..bored...and he really isn't knocked out and tired, and that would no doubt surprise the doctors except all they see is computer boy....so they think he is tired and bed ridden.. they completely miss the cavern paced into the floor. But it's not a big deal at this point and I am staying well on top of things.
In all honesty, he's had white counts like this before. They will come up in time. His red cell count is holding steady and his platelets fell to 98 which is low, but not transfusion low....we'll see what tomorrow's numbers look like. He's putting a hurting on the little milk containers in the nourishment center refridge....
his white count is in the toilet.....very low...500 when normal is 4000-10000.
so no real surprise, but he still feels good..bored...and he really isn't knocked out and tired, and that would no doubt surprise the doctors except all they see is computer boy....so they think he is tired and bed ridden..
In all honesty, he's had white counts like this before. They will come up in time. His red cell count is holding steady and his platelets fell to 98 which is low, but not transfusion low....we'll see what tomorrow's numbers look like. He's putting a hurting on the little milk containers in the nourishment center refridge....
Thursday, July 29, 2010
thursday update
Brian is doing well today. He has announced to everyone that he wants to go home. They are all sure that his counts are going to plummet and he is going to be feeling poorly in about 4 days.
That is certainly possible, but if that didn't happen, that wouldn't surprise me either. I have watched Brian go through things that would bring most to their knees.
It is getting pretty boring, I've read 5 books, and watched a stack of DVD's.....Brian has not been able to read because of his blurred vision, but he has been playing his video games.
I've also been making beaded lariats...the Id holder kind. In a way it is ironic since it was when Brian was undergoing chemo as a kid that I first saw the Id lariats and thought of making beaded ones after seeing some pretty boring ones on the nurses and Doctors. They don't wear them here, most wear their id's on spring loaded clips as they are also swipe cards.
Scott brought me some more food, so I am free of hospital meals for a couple days. I can fit a little in the room fridge, so that is good. Save a little money and my stomach.
That is certainly possible, but if that didn't happen, that wouldn't surprise me either. I have watched Brian go through things that would bring most to their knees.
It is getting pretty boring, I've read 5 books, and watched a stack of DVD's.....Brian has not been able to read because of his blurred vision, but he has been playing his video games.
I've also been making beaded lariats...the Id holder kind. In a way it is ironic since it was when Brian was undergoing chemo as a kid that I first saw the Id lariats and thought of making beaded ones after seeing some pretty boring ones on the nurses and Doctors. They don't wear them here, most wear their id's on spring loaded clips as they are also swipe cards.
Scott brought me some more food, so I am free of hospital meals for a couple days. I can fit a little in the room fridge, so that is good. Save a little money and my stomach.
Wednesday, July 28, 2010
Wednesday PM update
Brian's labs don't look too bad today. All are a little below normal, but pretty much what you would expect.
He did develop an ulcer on his bum from the chemo, we've had them before, so we know that getting right on it is the best way to nip a potential problem in the bud.
He's officially considered neutropenic (or neutro penis as he used to call it when he was younger) ,so no more fresh fruits and veggies. It was impossible to bring the veggie washer to the hospital, so he is just going to have to endure without until his counts recover.
It's a little harder being away from home, I can't slap 1/2 cow on the grill and bring it into him to eat, he's going to have to endure hospital food...and let me tell you...having eaten in quite a few hospitals now, I can say with reasonable experience, the food here is terrible.
Special thanks to my long time friend Elizabeth. She has a knack for knowing how to help and what to say., and it's almost scary how well she knows me. We've been friends a long time and I am lucky to have her.
He did develop an ulcer on his bum from the chemo, we've had them before, so we know that getting right on it is the best way to nip a potential problem in the bud.
He's officially considered neutropenic (or neutro penis as he used to call it when he was younger) ,so no more fresh fruits and veggies. It was impossible to bring the veggie washer to the hospital, so he is just going to have to endure without until his counts recover.
It's a little harder being away from home, I can't slap 1/2 cow on the grill and bring it into him to eat, he's going to have to endure hospital food...and let me tell you...having eaten in quite a few hospitals now, I can say with reasonable experience, the food here is terrible.
Special thanks to my long time friend Elizabeth. She has a knack for knowing how to help and what to say., and it's almost scary how well she knows me. We've been friends a long time and I am lucky to have her.
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