Sunday, December 2, 2012

where is my camera charger ????

argh....can't find the charger cord to my camera...why is it electronics evilly plot against us?....I cant not count the number of times I have gone to use the printer to find it ...unresponsive...

auctions coming soon..plz stand by due to technical difficulties

user error...


watch this amusing video during intermission

http://youtu.be/rXpjX4l0hRg

and this one

http://youtu.be/bSywiwgC4Dk

Sunday

Paperwork is organized....binder set up...reorganized to keep all Brian's test papers/results...12 years ago this month, Brian was first diagnosed with anaplastic large cell lymphoma.
When I think back on it, it's funny the things we remember...we've managed a lot of funny times along with the scary painful ones.
I wish everyone really knew Brian like I do..his sheer will and determination..his compassion...his sense of humor...and his brilliant mind. I also wish I could fight this battle for him.

we worked on some math again today, he still has to take his placement tests for college and he's still determined to go which I think is fantastic...focus on the good :)



Saturday, December 1, 2012

Brian ran a bit of a fever today, and was tired, so we grabbed a dvd from redbox "The Raven" and watched that, it was pretty good. I haven't rented a redbox in a while...it was $1.24 instead of a $1.00...I don't know when they changed their pricing and $1.24 seems like a weird increase..why not .25 cents? ah well..I like redbox..cheap and convenient...I still don't know why they don't have them at the hospital...seems to me like that would be brilliant.
 I got all his appointments for his testing and scan scheduled, and am just waiting on the precertification for the PET scan. But We have plenty of time before the scan so I am not concerned.
It looked like snow all day but weather report says it is going to be a bit of ice this am....hope it doesn't prevent Scott from getting home from work today :(

I am going to try and get some ebay stuff done tomorrow and I hope tp get some things in my etsy store too...not feeling the motivation...but the stress was tolerable...Brian did a few miles pacing in a 5 foot radius though....pretty typical for him ...Then he chilled on the bed playing with Leni....she has him wrapped around her tiny little calico paw...thank goodness he has the pets, they bring so much to his life.
We played warcaft for a bit before he went to sleep. I'm going to make sure the firewood is covered over in case we do get ice....I hate wet wood...I have to work way too hard to get the fireplace started. Then I am going to get some sleep for a bit..
I haven't given much though yet on what we're going to do holiday wise...usually we decorate a lot but I am not feeling it right this minute...I guess we'll figure it out on Scott's next day off from work.

Friday, November 30, 2012

reading material

if you have any paperbacks to share plz keep us in mind...good for that sitting and waiting..thanks :)

I'll be happy to return them if you put your name/addy inside them.
Brian's new Dr. Visits and test schedule has been added to the calender.
Thank you to those who have emailed their good wishes and thought and prayers

Wednesday, November 28, 2012

round like a circle in a spiral like a wheel with in a wheel..

You would think somehow these posts would get easier....the trip to Univ. Of Penn with Brian brought us no great sigh of relief. His oncologist is very concerned. She put him on two weeks of antibiotics and a course of antifungals just to make sure the enlarged lymph nodes are not from any underlying infection. His spleen is still enlarged.  Just covering bases and going through the diagnostic process.( he has an infected toenail) He will have a PET scan the week between xmas/new years..to be scheduled in the next few days...and a revisit to Uof P on 1/9. At that Time there will be a biopsy scheduled, and we will know for sure what we are dealing with. And not to be pessimistic but realistically it looks like the cancer is back and out of remission. Things are likely to move quickly once the biopsy is done, so I have about 5 weeks to get things fixed, and put in place and get things sold so we can go through this a third time. I am not quite honestly sure how we can and will face the expenses, haha to say little of the stress.. but you'll be seeing a whole lotta ebay links posted no doubt....it's daunting to think about this a third time....just the gas/parking alone much less all the other expenses...and it's hard to handle it all myself...( Scott is still our only income) but the key is to stay proactive and not let things slide (ugh and the paperwork nightmare).
I am going to try and find an inexpensive place to take Brian away for a few days to get ready for the ordeal ahead...if we can....so suggestions are welcome

Did I mention the paperwork nightmare??

Brian's response to today was..."it's okay"..

He is by and far the most amazing person on this whole planet.

round like a circle

Friday, November 2, 2012

ehh.....due to the power/gas/road closure issues, we were forced to reschedule the trip to Philadelphia. Unfortunately the soonest appt we could get was 11/28.
Hopefully by then we can afford the next exhaust system my car needs anyhow..but I shouldn't complain....it's old and has crazy mileage but it still a good vehicle.